That hurt!

First time in the butt with the Rebif and ouch! That has to be the worst spot of the lot, it's actually throbbing. I have to wonder if I got the right bit, coz it's really definitely throbbing back there. At least it's the bit I don't actually have to sit on. Course poor Jagr isn't enjoying me having to do this every other day. He has a bit of a phobia with needles, I do figure over time tho he's going to get use to it. Got to admit at this rate I'm going to be skipping the butt if I can and doing the other 6 spots, it's just awkward to do it myself and well yes see above, I may even have to resort to some tylenol for this one. I'll check with the nurse but I think 6 spots still has to be enough to rotate around to skip the butt.

I'm managing at least with self injecting, it's not horrible. Not fun but not horrible. Oh and all your spooks and ghouls Happy Halloween! And someone come by for our candy /sniff no one every comes around apartments trick or treating /whimper.

Jagr Gets Promotion - And some Time off

The jammy so and so he gets to have most of this week off! Ok so my wonderful husband deserves it but /sob I get to miss out spending time with him during the day (sniffle). Ah well I'll cope. Next year baby we have to go away together and spend time together during the day. I'm definitely hoping tho the promotion will mean a bit more time with each other on a weekend.

I gets to go to the salon for some pampering for our wedding anniversary not going to complain. He's set me up with my girlfriends next weekend with a pedicure and a facial, yumm. I should be nice and relaxed by the end of the day.

Oh a quick update on medications so far so good, next week I up the dosage so we shall see but as of yet I've not really felt any of the side effects and the injection sites you can't really notice. I am struggling at the moment with early mornings getting into work, bet part of it is that I now don't see daylight till I leave again. It's 8am now and it's like the black hole of calcutta out the window right now, lots of fog, probably not helping the sleepy feelings. Now don't get me wrong I love the winter I love the fog and I love the rain. Just yep I do get sleepy. Oh and I can't wait till we can use the fireplace, it's still a bit too warm but when it starts droping to close to freezing I am looking forward to using it and curling up with my husband and the cats.

I think tonight I might get the needlework out so that Jagr and read and I feel like doing something quiet like. He wants to start his own podcast so I'm excited for him. Me I think I'll get back into stitching and I want to get into growing some plants out on the balcony. I'm not going to start tho with that project until the summer, I reckon any seedlings I manage to grow right now might not appreciate the chilly mornings, specially as most of them will have to stay outside. Light is still a bit of a problem in our place so we shall see, maybe some plant stands for the bedroom which is the only place that gets daylight during the day.

Started up on Rebif

I got to see the nurse last night and started up on the course of medication which will probably continue now for the rest of my life. First injection wasn't so bad, went into my stomach and so far very little reaction to the medication, only down side is as per normal I'm just exhausted this morning, nothing new there. I do want to cry tho I missed having a lie in this morning which I was looking forward to! Conversely my boss is probably happy that I'm in. Also it meant I could sleep off the worst of any side effects if any last night before coming into work. If we had done it the other way around I could have been even more miserable today.

All in all, so far I can live with the injections in the stomach we shall see about the other spots as we go through them. The nurse was wonderful with suggestions about how to manage some of the side effects and was very thorough explaining all of that, I definitely felt comfortable during the whole experience, she even gave me suggestions for over count things I can get if I end up with red spots and things from the medication. Oh and I need to make sure I have a supply of tylenol handy until I may get used to this, that helps with the flu like symptoms.

Now for the other news Jagr got his promotion at work! Yay, that will be a help to us I'm sure. Not to mention it will change his work nights so we get Friday nights and Saturday mornings together. No more having to do the damn shopping on my own wee! I'll have to do it this weekend then after that hopefully I will have some help. I can't tell you how much I'm looking forward to that. The shopping I don't mind so much I really don't it's the lugging it up the stairs and the putting away that I don't like too much. I'm more than happy to plan and go and shop I just hate coming home and dealing with all of it after, specially trying to do it on my own, at that point I am getting tired I really am.

The more I learn about MS

The more I learn about MS the more I wonder about some of the things I experience, and I have to ask myself what is normal to me is not normal for other people. And honestly some of it describes symptoms of MS. Now it is normal for me to get up at least once during the night and go to the bathroom, some nights however I can go a lot more. I've always put it down to being overweight a bit, waking myself up snoring or getting un-comfy sleeping around the cats when I'm awake I have to pee. But...a lot of MS sufferers have bladder issues, I have to wonder if my trips to the bathroom are not related to this rather than to other things. It's something I might mention to my Dr. not that I'm terribly comfortable with that idea but maybe I might be able to get this managed better and perhaps ultimately get a better night sleep. At this point by the end of the week I'm just exhausted half the time from not getting a decent night. I can honestly say I can't go more than at most 3 hours in general before waking up. I seem to go to sleep about 9 and wake around 11 or 12 then go back to sleep wake again maybe 2 or 3 go back to sleep and invariable wake up sometime between 4 and 5 again most times before the alarm goes off.

I get up in the morning and I am dragging my but out to work specially during the winter. I guess only my Dr. can really give me those answers. I'm also reluctant to talk to Dr's. Call me old fashioned but I am. I don't like taking medication I don't like waiting in an office feeling like doodoo forever to see a Dr along with other sick people as invariably I just feel worse. The more I can avoid a Dr. the better, I'd rather live with stuff than see someone about it half the time. I'm the same way about the gynecologist. Admittedly when I see her next I will have a lot to tell her, I really am thinking more along the lines of doing something very permanent so I never had children. I do not want to have a child and for my symptoms to get worse then have Jagr have to take care of me and a child at the same time. The would not be fair. And who knows how expensive MS may and up being with medication anyway.

I'm glad society is more accepting about childless couples and I hope people understand our reasons for never wanting one. We don't have a lot of family support around us that can help out at the drop of the hat, and we like to have our independence. And I don't want a child of mine to grow up to maybe have to take care of me either.

Parents get back safe and sound

Mum and Dad got back safe and sound from their trip halfway across the country. Course all of us were a bit tired last night so we kept it short and suite. Did manage to at least impress them with chicken soup for dinner last night, lets see how we can do with the stuffed peppers tonight. I'm definitely trying to keep to the plan the rest of the week.

So so tired today just got to keep trying to go on. I feel like a zombie tho. Hope this improves because right now I'm a waste of space.

Things arriving in boxes

Yesterday I received the autoinjector and a travel kit that I guess eventually I'll use to inject Rebif. Now for some reason I'm getting a little nervous, but the prospect of my MS turning into progressive some day and that this may help to slow this all down weighs on me for sure.

Day has been weird at work and I mean weird! I get a call from my boss suddenly during lunch asking me what the name is of the people who live in Pennsylvania are called that don't use electricity....then I'm talking with one of our male engineers later. He's all in a hurry to get to an apt to get his tires rotated, he bought those tires only earlier this year, so I ask when was the last time you had them aligned. He was em like never..../smacks forehead on desk. I suggest you might want to get that done he starts moaning that he can't afford that...well if it's out new tires are more expensive than an alignment dude!

Finally things are moving with my medication

Things finally seem to be moving with my medication that I'm going to start taking for MS. Everything has been approved so now I'm just waiting for my first shipment and the nurse so I can learn how to inject this stuff. I'm not looking forward to that part but oh well you do what you have to do right?

It's funny, I mean I don't have a whole lot of MS symptoms but I wonder sometimes if the fatigue I get and the poor nights sleep I have are part of it. Not sure I'll ever know as well I have no idea what should be normal I have nothing to compare it with. Thinks I take as normal for me may just not be normal for other people. I'm not worried about it but more an observation than anything.

Tough day at the office today as I'm juggling a lot of files and things so best to keep this short and sweet. Just wanted to post my relief about the medication. I am going on this because I'm afraid of eventually having an attack again in my eyes and loosing sight more permanently. I can manage the tingling sensations but the loss of eyesight now that bothers me.

Congrats go to FloYd and Rufus!

Close friends of mine from the UK became parent's yesterday wooot! I know this has been a long journey for them and 2 years trying but grats guys I know you will make wonderful parents. I've known both parents for about 15 years I kind of met them same time as I met my ex, FloYd actually had the room next to my ex in the last year he was at Uni. Funny thing is I've kept in touch both with him and his wonderful wife where as my ex hasn't. Strange how things go they were both in attendance at our wedding.

I think FloYd is over the moon about becoming a Dad and both of us wish you guys well. We have nothing but love for you even tho we are far far away.

It's funny there aren't many relationships I cherish but this one I do. You guys are both awesome and I am privileged to call you friends.

New Stuffs

Got the new table and chairs yesterday, and realized then that the woman in the store had managed to order the chairs we didn't want, instead of the ones we did, guess I should have checked my receipt more carefully. I came home and looked at them and I'm thinking they were a bit dark...then I realized they were totally the wrong ones. Having thought about it for some time looking at the table I then decided that it wasn't that bad and I actually quite liked them so going to keep them rather than getting the ones we originally wanted. I'll go ahead and post a picture of the new table later. Either way the whole set up is better than what we had before and even Jagr is enjoying the change in the nook there, with all of the flaps up there is more than enough room to easily sit 6 if we need it but it folds down nicely into a small 4 seating table.

Commute last 2 days have been a bother, why is it people can't drive in the rain here I swear! All you really need to do is slow down a bit and keep your distance morons, please save the rest of us more responsible road traveler's the headaches your spills make. I hope you aren't hurt but for heaven's sake be smart about driving with the roads are wet! We had a spin out on 880 this morning, followed up by a stall on the San Mateo bridge...took me a lot longer to get in than normal. Last night I don't know what was going on but I hit solid traffic the moment I hit the tolls, took forever to get off that stretch of road. The pain is going my alternate route as much as it avoids traffic it's longer both in time travel and in distance instead of the 40 minutes it should take me to get home it took me nearly an hour and a half! Can't see them improving this any time soon but oh man what a pain in the rear end.

And let me take this moment to tell the world what an idiot and ass my eventually to be ex brother in law is...he got thrown into jail Monday night for a domestic incident. My sister didn't elaborate much more than that but at least she knows now it's not just her. Frankly he needs a huge wake up call because my sister is now wondering if she should be letting her daughter spend time with him when he ends up in jail like that. She needs his support helping to raise their child but can she trust him she doesn't think he will hurt their child but I know she is scared. He also blew out the weekend that he was supposed to have with their daughter for some reason. He's not very reliable, I know the army is hard and they have to jump when they say jump, but I think my sister has been making excuses for him for far too long.

My advise was talk to someone independent, not a friend not family for some subjective advise see what her options are and see if there is something they can set up between them. She doesn't want to have to keep their daughter away from him but well he's not exactly being a terribly responsible father either. I feel for her I really do and with our parents here right now she hasn't got many options for help right now. I keep wondering if she should get in touch with one of my friends at least she has a child about the same age and maybe able to help a little bit maybe. Most of her's don't have kids or just live too far away to help.

Anyway, I've rambled enough I hate to put out my sister's problems here mostly I want to rant about the ass and looser that her ex is. He has a wonderful child there ok so she has her bad moments but he is going to loose out I hope he doesn't complain again about not seeing enough of his child that he has to blow off because he's in jail. Idiot needs to stop drinking and turn his life around and stop making excuses for himself and my sister shouldn't feel responsible for him as he's acting worse than a child one child is bad enough but two....

It's Been Awhile

Ok so it's been awhile since I last made a post. But between people visiting, moving and finishing moving in, and then catching up on work, even though I tried to stay on top of that while I was on 'vacation'. Anyway finally things seem to be slowing down a bit. Last week was insane at work as we were running on a skeleton staff which meant I was support, sales and just about everything else it was knackering to say the last.

Anyway back to the more interesting stuffs. Our new dinning room table arrives today, I can't wait to get home tonight and see it! I'm only glad I won't be there when they are delivering it. I also for the first time in awhile managed to get a full night's sleep. Now you might wonder why is having a full night's sleep noteworthy? Well honestly I don't remember the last time I slept like that! I finally figured out that the new bed cover was probably too warm and that had me waking up every 2 hours I swear, last night I finally just left he window open and clearly that kept it cool enough for me to just pass out. I'm going to have Jagr switch our covers today so that we go back to the old one which is lighter and probably easier to sleep under at the moment.

News on the Rebif, they messed up so I'm following up again and if I don't hear by the end of the week I'm going to be jumping up and down on people. I wasn't overly fussed before as I was just insanely busy trying to get other things done with work, with a bit of luck tho I'll get onto that before the end of the week or at least have an appointment with a nurse.

Did I really just have a vacation?!

Man I'll be honest I'm starting to get run down. I just had three days vacation, which was supposed to be a 5 day weekend...of which I checked work email every work day, and even drove to work on Monday morning and put in 2 hours in the office. Then I get back from the 'vacation' and put in a 10 hour day! On the bright side I did actually get a night off last night, I came home from work I didn't have people coming over, I didn't have any boxes to unpack what a relief! Instead I got home from work (late), and collapsed in a small heap in the chair for about 3 hours or so before heading off to bed, and boy did I sleep! Only thing I wish for tho is to be able to sleep more than 2 hours at a time without actually waking up. Not sure if that is normal for most people but it seems to be for me, only blessing on that is I do actually just manage to drop right back to sleep again.